Still waiting....specialists may not be so "special"

We saw Doctor #2 2 weeks ago, a pediatric ortho doc at Seattle Children's--very nice guy. However he wants us to see a spine surgeon because he believes the 2mm syrinx in Z's spinal cord is CAUSING the scoliosis and believes if the syrinx is "decompressed" it may correct the scoliosis. That involves invasive, painful surgery and that scares me to death. I torture myself with the "what ifs" surgery goes wrong...I won't go into that here. I am still trying to keep positive. So, we left our second appointment withe second specialist with a different treatment option and a new referral. Back to Seattle on 4 August to see Special Doc #3. I am praying he doesn't believe cutting my baby open is the best option at this point. I am sure at some point in his life surgery will be inevitable, and I won't think it is a good time/idea...but I am still dealing with the shock of it all. On a more positive note...I am consulting with the Shriner's Hospital in Salt Lake City Utah as there is a doctor there who does a serial casting method we are interested in. It is a alternative treatment that TriCare (our military health insurance) won't cover and we will incur bills for travel and time out of work..but if the doctor there will take our case we are seriously considering it as a treatment option. For those who are interested in reading about the procedure visit the ISOP website. The coolest thing for us is that the hospitals care coordinator put us in touch with another Army family RIGHT HERE ON Ft. Lewis who is traveling to Salt Lake for this treatment. We called them, got together for dinner and heard their brave and scary journey down this scoliosis path. Their boy is almost 3 and is in his 5th cast with AMAZING improvements. Their little guy has had a ROUGH start at life and is much worse off than Zachary but he is thriving. We are so blessed to have had that opportunity to meet them and get tips on how to deal with the military medical system and how to travel best to/from Utah if need be. So until I update in August after we see the spine surgeon please keep positive thoughts and prayers going for us and pray for baby Broadie on Ft. Lewis!!!!